We are collecting anonymised information on patients with familial chylomicronaemia syndrome (FCS)/multifactorial chylomicronaemia syndrome (MCS) as a service evaluation & quality improvement project.
The project aims to improve understanding of natural history of FCS and to validate the use of FCS scoring algorithm.
The project is approved by Manchester University NHS Foundation Trust and is supported by HEARTUK, Mighty Medics and IAS.
Currently we are collaborating with 5 European countries and we wish to extend our invitation to all international clinicians who have FCS patients in their care to participate in the project. The project is coordinated from Manchester UK.
For more detailed information on the project, please see cover letter for the project and data collection form. Queries about the project and completed data forms should be forwarded to Dr See Kwok: See.Kwok@mft.nhs.uk
Handrean Soran MBChB MSc MD FRCP
Consultant Physician and Endocrinologist
Manchester University NHS Trust, Manchester, UK